From the moment they met me they knew I was going to be something special and unique. I was going to require more attention then all of their other kids combined and I was going to require them to be completely 100% all in because this roller coaster given to them was going to be really rough.
They didn't know where to go what to do who to call they couldn't understand why they were being chosen to raise a child with a disability. at that moment my mom said all she could do was question God. I know what her thoughts were because I went through the same thing and all you can ask at the moment is really God really?
As a child I was always put in the regular classes even though I wasn't like any other child at my school. my parents never separated me or made me feel different they made sure that I did everything any other child did.
When it was time for me to go to middle school they made sure I was at a school that was accommodating to my disability needs still allowing me to be in the regular program.
When I made it to high school I tried a few high schools before I was able to go to the one that I graduated from.
When it was time to go to college the counselors did not think it was a good idea because of the setting so they tried to enroll me in a community college but I knew where I wanted to go to school and I refuse to go to any other place so I enrolled in Southern University.
my counselor agreed that I could go there but they would not pay for my schooling unless I went there and completed the first two semesters with a 2.0 GPA or higher. So not only did I do that but my first year I had straight A's and I was able to get my tuition paid for my books paid for and my supplies paid for for my entire undergrad and graduate enrollment.
After graduating from college I decided to work with people who were diagnosed with disabilities and from there I got married had two children and decided to create my life as a entrepreneur.
I currently work from home while raising my 10-year-old and seven-year-old daughters. In 2005 I got married and we had our first daughter this was a complete shock because the girl on the crutch was having a baby and it was just something nobody thought was going to happen to me.
When Jermany turned three we found out I was pregnant with our second daughter Trinity and this was a complete shock we had no idea I was pregnant at all. Unlike my first pregnancy this pregnancy was a smooth breeze. I had absolutely no complications and every doctors appointment was perfect.
In November 2008 when Trinity was born we were expecting a healthy vibrant outgoing bundle of joy and she was just that for the first two daYs. God gave us something more unique than I was. Trinity decided after the first 36 hours of her life to scare us halve to death.
On the second morning of Trinity's life while giving her her morning bottle feeding Trinity started to choked on her milk. I remember sitting there watching white stuff come out of her nose and mouth screaming telling my husband to go get the nurse something is not right. as a result of this she was rushed to the NICU even though we didn't know that at that time. From there she would spend the next 20 days being a subject of test and procedures trying to find out why she could not swallow her milk.
At that moment when the nurse took her out our room. I was confused lost and after literally five minutes I told him to go get the nurse she took my baby and after 30 minutes she told us to come with her and I remember my husband pushing me in the wheelchair to go see her and I was terrified I was crying I didn't know what was going on and I just remember him saying everything is going to be all right she is a Wheeler mixed with Simon blood. She's going to be alright.
So we roll from one side of the hospital to the other side of the hospital and I'm crying questioning God and praying for a miracle.
You see I didn't mention my husband and I had just reconciled. And life was dealing yet another blow. So you know the amount of questions I was asking God but I could not stop praying to him.
When we got to the NICU we found our daughter full of tubes from the nose and mouth incubated on a breathing machine. I lost it. all I could do was cry I didn't know what was going on and I couldn't understand what was happening. I just knew something was not right. nobody was there to tell us anything they just kept telling us she was going to be fine and they were trying to find out what was going on. no one was there to talk to us. no one was there to comfort us. here we were 26 years old married for 3 years a three year old daughter just getting back together after a serious break up and now this I was really really about to lose my mind.
After sitting in that hospital every day all day watching my baby go from doing absolutely nothing to doing 100% better I started to get bored. I started to do my own research and therefore I diagnose my own daughter and told them what to look for. She had a swallowing problem and it was like she was drowning in milk every time she tried to drink once they told me this I was able to give them different procedures to do on her so they could figure out the best way to treat her and once we decided that The feeding tube coming from her stomach was the best route to go we had that done. And life got extremely better.
The week of Thanksgiving in 2008 I asked the doctors that were treating Trinity if it was possible to send us home. they had put the feeding tube in her stomach my husband and I were able to feed her with no problems and they had diagnosed her with congenital Hypomylinating neuropathy.
Once we got home we were able to learn how to live what we consider a normal life it was full of therapy doctors appointments. And of course church.
Trinity is currently seven years old and I am currently 33 year. we both are living with our disability as normal individuals we do everything we want to do the best we can do it. there is nothing we would we do not attempt to do.
Trinity is in the first grade and attends a regular school in a regular classroom setting she walks on a walker and I walked on a crutch every day for assistance. our oldest daughter Jermany is in 4th grade and helps around the house with anything we cannot do.
I am currently a single parent raising both of our daughters. My husband and I divorced in November of 2014 and remain best friends. I do the best I can and I try my best to make sure I show them that there are no limits unless you create them.
I currently work from home as a independent BeautyTainer for Tyra Banks and I am enrolled in the Steve Harvey Success Institute 16 weeks success program. I have a bachelors degree in rehabilitation services from Southern university and I have over 40 hours in my graduate program going towards a masters degree in professional counseling.
Trinity and I both have A form of muscular dystrophy called congenital myelinating neuropathy I have the mother version which is hyper myelinating neuropathy and she has the daughter version. This disability is a weakness of the nerves and muscles and it slows down the developmental process of your nerves and muscles in the beginning stages of life.
As a result of us both having this disability we cannot feel physical pain cannot run can not grip things with a firm grasp or walk in heels lol.
Our limitations or limited but we are still able to do most anything you can. We understand God is in control and has the last say and therefore our prayer is to be able to live a able-bodied life in a disabled body with no regrets helping others do the same.
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